DES Has Affected Three Generations So Far

Diethylstilbestrol (DES) was the first synthetic estrogen to be created. Never patented, it was cheap and easy to produce, so DES was made by hundreds of drug companies in the U.S. and around the world. DES was prescribed to millions of pregnant women in the mistaken belief that it could prevent miscarriage. It did not work but instead, DES harmed the mothers, the children born of those pregnancies and possibly the grandchildren and beyond.

Read more about DES

Updated Gynecologist’s Guide

We’ve updated the Gynecologist Guide to print out and take to your next appointment. It includes the latest findings, insurance codes for DES Daughters and the new guidance that DES Daughters should have annual PAP tests. You can download it here.

THE BENEFITS OF MEMBERSHIP

  • Subscription to VOICE quarterly newsletter – everything new about DES, endocrine disruptors and their effect on people.
  • Access to the full archives of VOICE newsletters – catch up on the past year or read the very first issues from 1988!
  • View our library of videos with interviews of DES writers, films and researchers
  • DES Daughters can join our private, online support group just for Daughters
  • DES Sons and Grandsons can join our private, online support group just for Sons and Grandsons
  • Access to our list of doctors that members have recommended

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DES: A population health tragedy

A DES symposium was held at Boston University and was sponsored by the Maternal and Child Health in Action and Group on Reproductive Health and Rights. Below are videos related to the history of DES and to the ongoing research. For a video of Attorney David Fine speaking about lawsuits related to DES, and for more about the symposium, click here.


1. A History of DES by Kari Christiansen

2. Linda Titus, PhD, MA, Professor in the Departments of Epidemiology and Pediatrics at the Geisel School of Medicine at Dartmouth, explains the current research on DES.

Watch our FB Live Videos

DES Action Executive Director Su Robotti interviewed Dr. Nita Karnik Lee on June 17, 2018. Dr. Lee is an ob/gyn with a specialty in oncology. She has done DES research with Dr. Arthur Herbst’s group at the University of Chicago.

Members can access our library of Facebook Live videos by logging in and going to the members content, video interviews section. In December 2018, Executive Director Suzanne Robotti and Community Manager Karen Calechman held a virtual Town Hall, answering questions from members about DES and taking a look back at the successes of our 40th anniversary year. In November, Karen interviewed Dr. Gary Levine, Radiologist and Breast Screening Specialist, focusing on issues specific to DES Daughters, including the difficulty of finding tumors in women who have dense breast tissue.

Previous interviews were with DES researcher Linda Titus (September); former Executive Director Fran Howell and former Program Director Kari Christiansen (August); Susan Helmrich, DES Daughter and co-founder of DES Cancer Network (July); Dr. Nita Karnick Lee, an ob/gyn with a specialty in DES and oncology (June); DES and Gender researcher Jacquelyne Luce, PhD (May); with DES lawyer Michael London (April); with author Susan Bell (March); with Peabody Award-winning documentarian Judith Helfand about her movie A Healthy Baby Girl (February); and with Dave Fuehrer, creator of the StupidCancer app. Dave’s team added DES-exposed as one of the communities on the free app (January). Click for videos.

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