The mission of DES Action USA is to identify, educate, empower and advocate for DES-exposed individuals.
DES Action USA is the only national organization for all individuals exposed to DES, their families and health care providers. DES Action USA has been serving the DES-exposed community since 1978. In 2015, the board of directors voted to donate the organization to MedShadow Foundation, which it determined to be the right home where DES Action could continue to thrive.
DES Action USA proudly accepts no funding from the pharmaceutical industry!
- New members get a comprehensive packet with detailed information about DES health consequences and recommended screenings.
- Members receive the timely and informative DES Action USA VOICE newsletter four times a year. A must-read for all in the DES community!
- Our DES Daughters Online Support Group listserv allows for email discussions on a safe and secure system between DES Daughters The group offers ideas and support among those who don’t need to be told what diethylstilbestrol is! This is a popular benefit of DES Action USA membership.
- DES Doctor Lists are emailed to members rather than mailed. (Please note, most doctor names were provided by DES Daughters. We have some referrals for DES Sons but they are scarce and mostly in urban areas)
- Your membership helps DES Action USA advocate for continued DES research. There is strength in numbers and no one else will do it for us.
- With your membership support, you get that good feeling of knowing you are doing something proactive in the face of the DES tragedy!
JOIN DES ACTION USA and HELP SUPPORT OUR WORK!
DES Information For All:
- General information about DES health consequences and recommended screenings
- Doctor Lists (Please note, most doctor names were provided by DES Daughters. We have some referrals for DES Sons but they are scarce and mostly in urban areas)
- Directions for doctors on how to do a proper DES Daughter Pap/pelvic exam
What we are not able to provide:
- Financial assistance in paying for health care or insurance