DES Action is NO LONGER a paid member org.
All of our information is free to all. We are in the process of removing all references to memberships, so please pay no attention to any references to membership. In the past some information was behind a membership wall. We are removing those walls. If you can’t access information you need, please email Su@DESAction.org so I can get you the information you need.
We do continue to welcome donations to support our volunteer website. There are costs associated with maintaining a health website (updates, tech support, etc). There are also legal and insurance requirements which have further costs associated with it. All of the funds in both DES Action USA and MedShadow Foundation are publicly available, filed with the IRS and audited by an independent auditing firm. Please see all the information
MedShadow Foundation annual report: https://medshadow.org/wp-content/uploads/2025/01/2024-Annual-Report.pdf
The full IRS filing: https://medshadow.org/wp-content/uploads/2025/03/Tax-Filing-Form-990-for-2023-tax-year-8-31-24.pdf
DES Has Affected Three Generations So Far
Diethylstilbestrol (DES) was the first synthetic estrogen to be created. Never patented, it was cheap and easy to produce, so DES was made by hundreds of drug companies in the U.S. and around the world. DES was prescribed to millions of pregnant women in the mistaken belief that it could prevent miscarriage. It did not work but instead, DES harmed the mothers, the children born of those pregnancies and possibly the grandchildren and beyond.
Updated Gynecologist’s Guide
We’ve updated the Gynecologist Guide to print out and take to your next appointment. It includes the latest findings, insurance codes for DES Daughters and the new guidance that DES Daughters should have annual PAP tests. You can download it here.
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