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DES Action USA Board of Directors |
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Michael Freilick - Acting President
Bio coming soon
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Litsa Varonis - Secretary
Bio coming soon |
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Jill Vanselous Murphy - Acting Treasurer
Jill, a native of Princeton, NJ, has lived her entire life knowing about her DES exposure. She is the sixth of nine pregnacies and the only survivor, no thanks to DES, which her mother took for seven of her pregnancies. At the age of 12 she started a vigilant journey of regular screenings which she has maintained over the years. Three ectopic pregnancies and the dreaded t-shaped uterus lead to yet another journey called adoption. She and her husband are now the proud parents of a daughter adopted from Guatemala.
Jill has spent over 20 years in the nonprofit community specifically in membership/fundraising, communications and marketing. She has also helped start a nonprofit children's focused organization in the city of Alexandria, VA. A 10-year member of DES Action USA, she joined the board in the winter of 2009 and is excited to be working with a talented group of people who represent the DES-exposed community.
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Jennifer Bailer
Bio Coming Soon
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Joyce Bichler
Bio Coming Soon |
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Chris Cosgrove
Bio Coming Soon |
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Patti Negri
Patti is an L.A. native, DES Daughter, and lives in the Hollywood Hills with her drummer husband, movie star dog and two very adorable yet quirky cats. Patti owns Brain Brew Entertainment, a theatrical production company that specializes in interactive shows, custom-created sketch comedy, murder mysteries and team-building events. She produces shows for clients as diverse as the Mirage Casino is Las Vegas to the corporate worlds of Microsoft and Mattel.
Patti volunteers as polling place inspector at every local and national election, is president of her neighborhood association and still finds time to take her dachshund Dora to Film and TV auditions and the occasional wiener dog race
Patti is honored and thrilled to be working with the TRULY AMAZING Board Members and Staff of DES Action.
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DES Action USA Staff |
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Fran Howell Executive Director
Fran thanks her late Mom for giving her a membership in DES Action USA and keeping it current for many years. When Fran had trouble starting her family she began seriously paying attention to DES issues. After numerous infertility treatments failed, Fran and Kevin eventually became adoptive parents to their wonderful, now teenaged daughter, Shelby. Fran joined the DES Action USA Board, and when the opportunity arose she assisted with media relations - working with newspaper, TV and magazine reporters to successfully place dozens of media stories about DES. That parlayed into the job of DES Action USA Executive Director in January 2005. A highlight is meeting and working with an incredibly talented group of individuals from all around the country. |
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Kari Christianson - Program Director
Born in Fargo, North Dakota, which proves conclusively that DES was given to pregnant women everywhere, Kari is a DES Daughter with one brother, who is also DES-exposed. Prior to assuming the job of Program Director in 2005, Kari was a volunteer for 25 years with DES Action USA, starting as a founding member of DES Action Minnesota in 1980. She served as President of DES Action USA from 1984 1989 and again from 1998 2001. Kari is the DES Action USA representative on the Steering Committee of the National Cancer Institute DES Follow-up Study and on the National Institute of Environmental Health Sciences Public Interest Partners. She and her husband Milo dote on their three nieces and one nephew, all young adults now and some with spouses. It always has been a privilege for her to be part of this consumer organization of dedicated and inspiring individuals. |
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Pat Cody DES ActionVOICE Editor
Pat Cody is a DES mother and co-founder of DES Action USA, where she worked as Program Director from 1978 - 2004. Her years there saw the passage of Congressional funding for DES research, creation of our quarterly newsletter DES Action VOICE, and assistance in setting up DES groups in the Netherlands, Australia, Canada, France, England and Ireland.
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